The Supportive Care Needs of Regional and Remote Cancer Caregivers

Stiller, Anna and Goodwin, Belinda C. and Crawford-Williams, Fiona and March, Sonja ORCID: https://orcid.org/0000-0001-8425-7126 and Ireland, Michael and Aitken, Joanne F. and Dunn, Jeff ORCID: https://orcid.org/0000-0002-1180-3381 and Chambers, Suzanne K. (2021) The Supportive Care Needs of Regional and Remote Cancer Caregivers. Current Oncology, 28 (4). pp. 3041-3057. ISSN 1198-0052

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Abstract

Objective: As cancer survival rates continue to increase, so will the demand for care from family and friends, particularly in more isolated settings. This study aims to examine the needs of cancer caregivers in regional and remote Australia. Methods: A total of 239 informal (i.e., non-professional) cancer caregivers (e.g., family/friends) from regional and remote Queensland, Australia, completed the Comprehensive Needs Assessment Tool for Cancer Caregivers (CNAT-C). The frequencies of individuals reporting specific needs were calculated. Logistic regression analyses assessed the association between unmet needs and demographic characteristics and cancer type. Results: The most frequently endorsed needs were lodging near hospital (77%), information about the disease (74%), and tests and treatment (74%). The most frequent unmet needs were treatment near home (37%), help with economic burden (32%), and concerns about the person being cared for (32%). Younger and female caregivers were significantly more likely to report unmet needs overall (OR = 2.12; OR = 0.58), and unmet healthcare staff needs (OR = 0.35; OR = 1.99, respectively). Unmet family and social support needs were also significantly more likely among younger caregivers (OR = 0.35). Caregivers of breast cancer patients (OR = 0.43) and older caregivers (OR = 0.53) were significantly less likely to report unmet health and psychology needs. Proportions of participants reporting needs were largely similar across demographic groups and cancer type with some exceptions. Conclusions: Caregiver health, practical issues associated with travel, and emotional strain are all areas where regional and remote caregivers require more support. Caregivers’ age and gender, time since diagnosis and patient cancer type should be considered when determining the most appropriate supportive care.


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Item Type: Article (Commonwealth Reporting Category C)
Refereed: Yes
Item Status: Live Archive
Faculty/School / Institute/Centre: Current - Institute for Resilient Regions - Centre for Health Research (1 Apr 2020 -)
Faculty/School / Institute/Centre: Historic - Faculty of Health, Engineering and Sciences - School of Psychology and Counselling (1 Jan 2015 - 31 Dec 2021)
Date Deposited: 02 Mar 2022 03:13
Last Modified: 10 Jun 2022 02:54
Uncontrolled Keywords: Cancer; Caregivers; Regional and remote; Rural; Supportive care needs
Fields of Research (2008): 11 Medical and Health Sciences > 1117 Public Health and Health Services > 111799 Public Health and Health Services not elsewhere classified
Fields of Research (2020): 42 HEALTH SCIENCES > 4203 Health services and systems > 420321 Rural and remote health services
42 HEALTH SCIENCES > 4206 Public health > 420603 Health promotion
52 PSYCHOLOGY > 5203 Clinical and health psychology > 520302 Clinical psychology
Socio-Economic Objectives (2008): C Society > 92 Health > 9205 Specific Population Health (excl. Indigenous Health) > 920506 Rural Health
C Society > 92 Health > 9202 Health and Support Services > 920202 Carer Health
Socio-Economic Objectives (2020): 20 HEALTH > 2004 Public health (excl. specific population health) > 200409 Mental health
20 HEALTH > 2005 Specific population health (excl. Indigenous health) > 200508 Rural and remote area health
20 HEALTH > 2003 Provision of health and support services > 200399 Provision of health and support services not elsewhere classified
Identification Number or DOI: https://doi.org/10.3390/curroncol28040266
URI: http://eprints.usq.edu.au/id/eprint/43194

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