Contemporary consumer perspectives on prostate cancer survivorship: Fifty voices

Dunn, Jeff and Ralph, Nicholas ORCID: and Green, Anna and Frydenberg, Mark and Chambers, Suzanne (2020) Contemporary consumer perspectives on prostate cancer survivorship: Fifty voices. Psycho-Oncology, 29 (3). pp. 557-563. ISSN 1057-9249

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To describe contemporary consumer experiences and priorities of prostate cancer survivorship to inform the development of survivorship guidelines. In a cross‐sectional qualitative design, semi‐structured interviews were undertaken with fifty prostate cancer support group leaders (50% response) across urban and rural/regional Australia. An interpretative phenomenological approach was used to identify participants' experiences and priorities of survivorship. Three themes were identified for informing the development of prostate cancer survivorship guidelines: (a) the Experience of Diagnosis and Treatment, (b) Priorities for Survivorship and (c) Mechanisms for Support. Four priorities for prostate cancer survivorship were: delivering person and men‐centred care; improving communication; improving care coordination; and facilitating access to care. Mechanisms for support were as follows: advocacy; peer support; prostate cancer specialist nurses; and communication training for health professionals. The lack of progress in changing prostate cancer survivorship outcomes for men will become increasingly problematic as this patient population group grows. Co‐production provides a way forward to ensure relevance and accessibility for future survivorship initiatives

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Item Type: Article (Commonwealth Reporting Category C)
Refereed: Yes
Item Status: Live Archive
Additional Information: Files associated with this item cannot be displayed due to copyright restrictions.
Faculty/School / Institute/Centre: Historic - Institute for Resilient Regions - Centre for Health, Informatics and Economic Research (1 Aug 2018 - 31 Mar 2020)
Faculty/School / Institute/Centre: Current - Faculty of Health, Engineering and Sciences - School of Nursing and Midwifery (1 Jan 2015 -)
Date Deposited: 15 Jun 2020 05:15
Last Modified: 22 Jul 2020 03:35
Uncontrolled Keywords: care coordination; guidelines; personalised care; prostate cancer; survivorship
Fields of Research (2008): 11 Medical and Health Sciences > 1112 Oncology and Carcinogenesis > 111299 Oncology and Carcinogenesis not elsewhere classified
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