Older parents caring for adults with intellectual disability

Winterbotham, Sonya ORCID: https://orcid.org/0000-0002-2059-7620 and Knight, Bob G. and du Preez, Jan ORCID: https://orcid.org/0000-0002-2077-3524 (2019) Older parents caring for adults with intellectual disability. In: Innovations and Advances in Ageing Well: Joint Conference of the NZ Psychologists of Older People and the Australian Psychological Society’s Psychology & Ageing Interest Group in partnership with the Auckland University of Technology Centre for Active Ageing, 28-29 June 2019, Auckland, New Zealand.

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Background: Older parents of adults with intellectual disability (ID) face a lifetime of care. Despite the physical and psychological strains of caring many are reluctant to ‘retire’ and plan for their child’s external residential placement.

Method: Using a case study approach, parents and siblings of adults with ID from three families were interviewed in relation to their understandings of past and current care and also future planning.

Results: Parents who viewed the carer role as a parental obligation were at risk of isolating themselves from siblings of ID child thereby leaving siblings ill-prepared in an emergency situation. Though all families had considered residential planning, no plans had been established. Explicit barriers included complexity of disability, negative transitioning experiences in the past, and unpredictable changes within the family system. Enablers included personal growth of the adult with ID, and encouragement from professional supports such as psychologists. Discourses of ID may also be a factor, with descriptions of the adult as ‘child-like’ potentially preventing transition into adulthood, such as leaving home.

Clinical Implications: Psychologists could play a pivotal role in assisting families who are faced with such non-normative development of the family system, and so encourage future planning for care. Psychologists could also support parents in negotiating complex support systems such as the NDIS

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Item Type: Conference or Workshop Item (Commonwealth Reporting Category E) (Paper)
Refereed: Yes
Item Status: Live Archive
Additional Information: No evidence of copyright restrictions preventing deposit of conference abstracts.
Faculty/School / Institute/Centre: Historic - Faculty of Health, Engineering and Sciences - School of Psychology and Counselling (1 Jan 2015 - 31 Dec 2021)
Faculty/School / Institute/Centre: Historic - Faculty of Health, Engineering and Sciences - School of Psychology and Counselling (1 Jan 2015 - 31 Dec 2021)
Date Deposited: 09 Jul 2019 06:14
Last Modified: 11 Feb 2020 04:07
Fields of Research (2008): 17 Psychology and Cognitive Sciences > 1701 Psychology > 170113 Social and Community Psychology
Fields of Research (2020): 52 PSYCHOLOGY > 5205 Social and personality psychology > 520599 Social and personality psychology not elsewhere classified
URI: http://eprints.usq.edu.au/id/eprint/36743

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