Research participation by people with intellectual disability and mental health issues: an examination of the processes of consent

Taua, Chris and Neville, Christine and Hepworth, Julie (2014) Research participation by people with intellectual disability and mental health issues: an examination of the processes of consent. International Journal of Mental Health Nursing , 23 (6). pp. 513-524. ISSN 1445-8330


Abstract

Balancing the demands of research and ethics is always challenging, and even more so when recruiting vulnerable groups. Within the context of current legislation and international human rights declarations, it is strongly advocated that research can and must be undertaken with all recipients of health-care services. Research in the field of intellectual disability presents particular challenges in regards to consenting processes. This paper is a reflective overview and analysis of the complex processes undertaken, and events that occurred in gaining informed consent from people with intellectual disability to participate in a study exploring their experiences of being an inpatient in mental health hospitals within Aotearoa/New Zealand. A framework based on capacity, information, and voluntariness is presented, with excerpts from the field provided to explore consenting processes. The practical implications of the processes utilized are then discussed in order to stimulate debate regarding clearer and enhanced methods of gaining informed consent from people with intellectual disability.


Statistics for USQ ePrint 35534
Statistics for this ePrint Item
Item Type: Article (Commonwealth Reporting Category C)
Refereed: Yes
Item Status: Live Archive
Additional Information: Files associated with this item cannot be displayed due to copyright restrictions.
Faculty/School / Institute/Centre: Historic - Faculty of Health, Engineering and Sciences - School of Health, Nursing and Midwifery (1 July 2013 - 31 Dec 2014)
Faculty/School / Institute/Centre: Historic - Faculty of Health, Engineering and Sciences - School of Health, Nursing and Midwifery (1 July 2013 - 31 Dec 2014)
Date Deposited: 12 Aug 2019 05:02
Last Modified: 12 Aug 2019 05:23
Uncontrolled Keywords: capacity, consent, dual disability, intellectual disability, mental health
Fields of Research (2008): 11 Medical and Health Sciences > 1199 Other Medical and Health Sciences > 119999 Medical and Health Sciences not elsewhere classified
Identification Number or DOI: 10.1111/inm.12079
URI: http://eprints.usq.edu.au/id/eprint/35534

Actions (login required)

View Item Archive Repository Staff Only